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Help shape our national day of recognition, remembrance & connection

Your opinion matters

On Mon 25 March, we’ll be holding our first national ‘Say Their Name Day’, a day of recognition, remembrance and connection intended to help reduce the stigma of pregnancy and infant loss by reinforcing the idea that every baby matters and deserves to be celebrated.

We'd like to invite you to help us grow this concept into one that bereaved families across Australia will want to participate in by providing your feedback and helping to shape our future planning.

We've organised the following community events where we'll come together to ask you to be a part of our #saytheirname community:

Adelaide
7pm Monday 25 March
Goodwood Community Centre
32-34 Rosa Street, Goodwood (enter via entrance on Rosa St and follow signs)

Brisbane
10am Thursday 28 March
Sands House
505 Bowen Terrace, New Farm

Perth
1pm Sunday 24 March
Dome Maylands
219-221 Railway Parade, Maylands

At these events we'll remember those babies who have died as well as spend time together as a community, planning for the future. This will be an opportunity for you to have an impact on the development of what we hope will become a well-known and acknowledged day both in the bereaved parent community and beyond.

If you’d like to be involved, please get in touch with your State Coordinator to RSVP to your local event:

This email address is being protected from spambots. You need JavaScript enabled to view it. (VIC)

This email address is being protected from spambots. You need JavaScript enabled to view it. (QLD)

This email address is being protected from spambots. You need JavaScript enabled to view it. (WA)

This email address is being protected from spambots. You need JavaScript enabled to view it. (SA)

**Feedback/ideas are also welcome by email for those who can’t get to our gathering.

Hospital to Home – a new service to support grieving families following stillbirth

Today the Federal Government’s Minister for Health, The Hon. Greg Hunt MP, announced the launch of National Women’s Health Strategy 2020-2030, with an investment of $52 million to improve women’s health. As part of this announcement, $1.3 million will go towards launching a Hospital to Home service to support families following a stillbirth.

Sands Australia CEO, Jackie Mead, says “this announcement is a wonderful step in ensuring that continued care is available to families throughout Australia. It gives recognition that the Government hears bereaved parents and understands the impact of stillbirth on grieving families”.

Hospital to Home is an 18-month pilot program to be rolled out in five hospitals throughout Australia, using these bases to provide outreach support to bereaved parents across the community.

Ms Mead says that ongoing support to families is a must. “With approximately six families every day losing a baby to stillbirth, Sands recognises the need to provide continued support for those who feel isolated and lost in the days following the death of a baby. One of the key messages amongst the bereaved parent community is that it is the time after leaving the hospital, when you are at a house set-up for a new baby, without a baby to care for, that is the hardest”.

Ms Mead stresses “the importance of providing families with the offer of having support when they leave the hospital and arrive home”. Sands will be on-had to offer in hospital support to assist with memory making and funeral arrangements. Upon returning home Sands will deliver a peer supported model that provides connections to professional services, where required. The specifics of each program will be tailored to the family.

Ms Mead states that “when a family loses a baby there is a need for person centered care from someone who understands. We want to offer a parent-led approach to bereavement care so that parents can decide where they need help”.

Sands peer support model has worked for 40 years to ensure that there is always someone there for families who have experienced the loss of a baby. This pilot expands upon existing services including the 24/7 phone line, online chat services and fact to face peer support groups already available.

Say our babies' names this 25 March

On 25 March, Sands are inviting the community to support the first national ‘Say Their Name Day’, a day of recognition, remembrance and connection intended to help reduce the stigma of pregnancy and infant loss by reinforcing the idea that every baby matters and deserves to be celebrated.

The concept for ‘Say Their Name Day’ came about in response to feedback Sands received from bereaved parents as part of a survey undertaken in the lead up to the National Round Table into stillbirth research and education early in 2019.

“One of the most common things bereaved parents told Sands is how much the opportunity to say their baby’s name, and to hear it from others, means to them. Contrary to what people may think, talking to/with bereaved families about their baby does not compound their grief – it is often a welcome opportunity to express their love,” said Sands CEO, Jackie Mead.

Sands intends ‘Say Their Name Day’ to grow into a national awareness day that will encourage more people to talk openly about miscarriage, stillbirth and newborn death.

To support this, Sands has also released a new fact sheet called ‘Words Matter’ to guide family, friends, neighbours and colleagues in what it’s helpful to do or say when someone’s baby has died,” said Ms Mead.

“A stigma continues to exist when discussing a baby who has died. Sadly this leaves parents feeling isolated and alone. We want to help reduce this stigma by helping people feel more comfortable reaching out to a friend, colleague or family member to offer support.”

“Respectfully sharing stories and listening to grieving parents are two simple ways we can ensure that every family who experiences the death of a baby feels understood and supported.”
Melbourne couple Amy and Shaun Hidge say the act of saying their baby’s name, or hearing it from others, is empowering.

“It brings joy and warms my heart every time a friend or family member mentions Stella’s name because it reminds me that she played a very special part in all of our lives,” Amy said.

“A good friend recently presented me with a special gift with Stella’s name on it and I was completely overwhelmed with love and happiness to know that our Stella touched so many.”

How can people participate?

On or before 25 March bereaved families are invited to write their baby’s name on a paper heart and share with us via social media using the hashtag #saytheirname. These names will be gathered onto a heart-shaped display in the Sands national office, which will provide a visual representation of each family’s love for their baby.

Ms Mead said it’s important that the many parents who chose not to or weren’t able to name their babies can participate in ‘Say Their Name Day’ too.

“Just because a baby was not named formally does not reduce the sense of loss and grief experienced by families. We want those families to know that they can include their baby’s family name, a nickname used during pregnancy, a significant date, or meaningful symbol to represent their baby,” she said.

The wider community are invited to download our fact sheet, ‘Words Matter’, to share it widely, to start a conversation with a loved one whose baby has died to let them know their baby is remembered, or to share stories of pregnancy and infant loss to raise awareness and reduce stigma in the general community.

Training opportunity to help promote supportive care in hospitals - Perth Region

Sands is now recruiting volunteers in WA who will play a key role in ensuring bereaved parents receive supportive care at the time they are in hospital with their baby and in other healthcare settings.

Our Health Professional Liaison volunteers will be responsible for building strong relationships with local hospitals and other health care providers and delivering Sands' 'Caring for Bereaved Parents' presentations.

To fill this role you need to be confident to deliver presentations to small or large groups, and possess an understanding of the Sands community, either as a bereaved parent yourself or through another connection with Sands.

If you think you've got what we are looking for, or know someone who does, we would love to hear from you.

For more information:

Role description

To apply:

Please complete an Expression of Interest.